Users requesting access to controlled data are required to have an eRA Commons account. While most dataset access within the Kids First Portal is granted through dbGaP, there are some datasets whose access is reviewed and granted through consortia Data Access Committees (DACs).
Specific access management information is listed amongst the release notes and other general abstract information for each dataset. Our complete list of datasets can be found on the Studies and Access Page.
The three-tier system of data access types within the Kids First DRC. Some data is considered open access and available to any visitor to the website. Other data is restricted to registered users on the platform. The most stringent level is controlled access which requires approval by a Data Access Committee.
Once you have applied for access to the Controlled Data and approval has been given, you need to connect your eRA Commons ID to the Kids First Portal in order to gain access to your files. This is managed by Gen3, a software tool that manages access between files in the Kids First database with our users.
This is a bit like having to show your ID at the airport - you have the necessary documents, but the security worker at the desk still needs to see them. Thankfully, once you are connected in our system, you shouldn't have to repeat the process if you subsequently gain dbGaP access to additional datasets in the future.
For a step by step on how to do this and other information about Data Access, see the directions below.
Fully-connected data repository integrations.
You should now be able to view the files for which you were granted dbGaP access! If you wish to analyze them in the cloud or run a bulk download to a local system, you should also connect your account to Cavatica as well.
CAVATICA is a cloud-based data analysis and sharing platform that allows users to analyze data from Kids First along with their own files. Cavatica also allows you to bulk download files to a local system or remote server.
In order to analyze Kids First data on CAVATICA, you will need to link your CAVATICA account & an API token with your Portal profile.
Fully-connected Cavatica Integration.